February 11, 2008

Pixie Dust for PALS

Lithium combined with Rilutek could slow ALS progression?

Another United States discovery, no this hot item comes from the Italians. I suppose any news is better than no news at all. Lithium has been circulated in the neruogolical fiields for about ten years and now it's the newest healer, well maybe for this week. Something is horribly wrong with research results verses dollars spent. If Rilutek was more effective we would not need this new Peter Pan theory using Pixie Dust to slow ALS progression. Seems to me this sort of distraction only keeps us in that revolving door spinning between Life and Breath. We need Uncle Sam to stop wasting tax dollars on agencies that take a disease and uses it to create weekly paychecks. How about creating one task force to work on one disease. Make them accountable for progress every quarter, no results, new team / new staff.

Like Lithium, ten years back we had another debacle that was called Myotrophin. Kyle Hahn led his fight against the FDA only to have Hope taken from him. Last week we saw the courage of Leo Green giving Hope to Lithium.

Today Kyle and Leo have been taken from us by ALS and the movie never ends, it goes on and on and on.